CYSTIC FIBROSIS FOUNDATION

BETHESDA, MD, 20814-0000 (301) 951-4422 Est. 1955 EIN 13-1930701
G200 - Diseases & Disorders 990 - Public charity return 501(c)(3)
www.cff.org

Mission

SEE SCHEDULE O

Giving Portfolio

Total Grants
3,040
Total Giving
$857.1M
Recipients
1,147
Years Active
2018 - 2024
Avg grant: $281,243 Median: $148,855

Yearly Trends

YearGrantsTotal Giving Avg GrantNewRepeat
2024624$189.6M $304K6218
2023633$186.8M $295K15208
2022599$173.0M $289K25211
2020609$172.6M $283K42193
2018575$135.2M $235K2290

Sectors Funded

Health Care
1042
Education
860
Medical Research
99
Recreation & Sports
26
Diseases & Disorders
13
Youth Development
9
Philanthropy & Grantmaking
7
Unknown
5
and 4 more sectors

Top States

California
218
Ohio
194
New York
147
Pennsylvania
133
Massachusetts
122
Texas
114
Florida
100
Washington
91
and 41 more states

Grantee Size Profile

Over $50M
1584
$10M - $50M
100
$100K - $500K
26
Under $100K
8
$1M - $5M
4
$5M - $10M
1
$500K - $1M
1

Top Grantees

Page 1 of 3
$88.7M
$28.9M
MD - 4 grants
$18.6M
UNIVERSITY OF WASHINGTON
WA - 42 grants
$17.1M
$16.4M
GA - 37 grants
$14.4M
$12.9M

Grants Awarded · 2330 grants

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Financials

Total Revenue
$355,798,320
Total Expenses
$439,138,919
Net Assets
$4,693,624,506
875 employees 56,403 volunteers
From latest filing (tax period ending 2024-12-31)

Financial Health

Operating Reserve
10+ years Healthy
Net assets / monthly expenses
Year-over-Year Change
Revenue ↑ 21.8%
Expenses ↓ 1.0%
Revenue Sources
Contributions 27.0% Earned revenue 0.9% Investment 65.0% Other 7.0%
Expense Breakdown
Program 79.0% Management 13.1% Fundraising 8.0%

Officers & Trustees (29)

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Filing History (5 filings)

YearRevenueExpensesNet Assets
2024 990 - Public charity return
Jan 1, 2024 to Dec 31, 2024
$355,798,320 ↑$439,138,919$4,693,624,506
2023 990 - Public charity return
Jan 1, 2023 to Dec 31, 2023
$292,016,280 ↑$443,404,599$4,592,956,300
2022 990 - Public charity return
Jan 1, 2022 to Dec 31, 2022
$248,630,352 ↓$396,664,114$4,443,719,016
2020 990 - Public charity return
Jan 1, 2020 to Dec 31, 2020
$800,629,953 ↑$381,380,991$5,098,993,014
2018 990 - Public charity return
Jan 1, 2018 to Dec 31, 2018
$275,790,756 $337,912,568$3,775,363,472

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EIN: 13-1930701 · Source: IRS Form 990 e-file data