GLOBAL DOWN SYNDROME FOUNDATION

DENVER, CO, 80206-5203 (720) 548-5618 Est. 2009 EIN 26-4431001
E12 - Fund Raising & Fund Distribution 990 - Public charity return 501(c)(3)
www.globaldownsyndrome.org

Mission

TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE GLOBAL AFFILIATE ORGANIZATIONS THAT WE HELPED ESTABLISH AND CONTINUE TO FUNDRAISE FOR. GLOBAL AND OUR AFFILIATES WORK TOGETHER TO ELONGATE LIFE AND DRAMATICALLY IMPROVE HEALTH OUTCOMES TO ENSURE PEOPLE WITH THE CONDITION CAN REACH THEIR TRUE POTENTIAL. GLOBAL AFFILIATES INCLUDE: CRNIC INSTITUTE FOR DOWN SYNDROME, ALZHEIMER'S & COGNITION CENTER, SIE CENTER FOR DOWN SYNDROME, AND GLOBAL ADULT CLINIC. ANOTHER IMPORTANT PART OF OUR MISSION IS TO ENGAGE IN GOVERNMENT ADVOCACY THAT LEADS TO TRANSFORMATIVE INCREASES IN GOVERNMENT FUNDING FOR DOWN SYNDROME RESEARCH AND MEDICAL CARE WHICH IN TURN WILL CREATE A PIPELINE OF YOUNG TALENT DEDICATED TO THIS POPULATION. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A MUCH HIGHER INCIDENCE OF CERTAIN DISEASES (FOR EXAM

Giving Portfolio

Total Grants
57
Total Giving
$4.1M
Recipients
57
Years Active
2018 - 2024
Avg grant: $117,728 Median: $7,800

Yearly Trends

YearGrantsTotal Giving Avg GrantNewRepeat
20244$729K $182K31
20237$545K $78K34
202211$572K $52K101
20212$511K $255K11
20203$511K $170K12
201912$579K $48K102
201818$685K $38K180

Sectors Funded

Diseases & Disorders
15
Human Services
10
Education
8
Health Care
7
International & Foreign Affairs
1
Philanthropy & Grantmaking
1
Unknown
1

Top States

Colorado
13
Texas
6
Tennessee
4
Ohio
4
Nebraska
3
Missouri
3
California
3
Indiana
3
and 14 more states

Grantee Size Profile

$500K - $1M
14
Over $50M
13
$100K - $500K
13
$1M - $5M
7
Under $100K
3
$10M - $50M
1
$5M - $10M
1

Top Grantees

Page 1 of 3

Grants Awarded · 56 grants

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Financials

Total Revenue
$4,716,290
Total Expenses
$4,697,476
Net Assets
$7,285,846
25 employees 239 volunteers
From latest filing (tax period ending 2025-07-31)

Financial Health

Operating Reserve
18.6 months Healthy
Net assets / monthly expenses
Year-over-Year Change
Revenue ↑ 9.3%
Expenses ↑ 0.6%
Revenue Sources
Contributions 95.8% Earned revenue 0.1% Investment 4.1%
Expense Breakdown
Program 72.5% Management 15.4% Fundraising 12.1%

Officers & Trustees (12)

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Filing History (8 filings)

YearRevenueExpensesNet Assets
2024 990 - Public charity return
Aug 1, 2024 to Jul 31, 2025
$4,716,290 ↑$4,697,476$7,285,846
2023 990 - Public charity return
Aug 1, 2023 to Jul 31, 2024
$4,313,796 ↑$4,670,703$7,249,709
2022 990 - Public charity return
Jan 1, 2022 to Jul 31, 2022
$946,045 ↓$1,207,187$7,361,925
2022 990 - Public charity return
Aug 1, 2022 to Jul 31, 2023
$3,826,365 ↑$3,562,334$7,658,555
2021 990 - Public charity return
Jan 1, 2021 to Dec 31, 2021
$3,228,128 ↓$2,669,185$7,621,868
2020 990 - Public charity return
Jan 1, 2020 to Dec 31, 2020
$3,586,993 ↓$2,924,422$7,065,249
2019 990 - Public charity return
Jan 1, 2019 to Dec 31, 2019
$3,703,167 ↓$3,329,779$6,404,451
2018 990 - Public charity return
Jan 1, 2018 to Dec 31, 2018
$4,769,092 $4,048,136$6,031,063

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EIN: 26-4431001 · Source: IRS Form 990 e-file data