MUSCULAR DYSTROPHY ASSOCIATION

CHICAGO, IL, 60607 (312) 260-5900 Est. 1950 EIN 13-1665552
G50 - Nerve, Muscle & Bone Diseases 990 - Public charity return 501(c)(3)
www.mda.org

Mission

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Giving Portfolio

Total Grants
1,144
Total Giving
$81.2M
Recipients
1,028
Years Active
2018 - 2025
Avg grant: $71,137 Median: $35,834

Yearly Trends

YearGrantsTotal Giving Avg GrantNewRepeat
2025193$12.6M $65K35149
2023205$13.1M $64K19157
2022206$11.8M $57K45137
2021167$12.2M $73K11148
2020163$12.7M $78K21129
2018210$18.9M $90K1770

Sectors Funded

Health Care
391
Education
219
Medical Research
46
Recreation & Sports
12
Human Services
12
Science & Technology
11
Philanthropy & Grantmaking
8
Youth Development
7
and 4 more sectors

Top States

California
138
New York
82
Texas
74
Pennsylvania
65
Illinois
56
Massachusetts
55
Florida
52
Ohio
40
and 40 more states

Grantee Size Profile

Over $50M
521
$10M - $50M
55
$1M - $5M
23
$5M - $10M
20
$500K - $1M
5
Under $100K
2
$100K - $500K
2

Top Grantees

Page 1 of 3

Grants Awarded · 811 grants

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Financials

Total Revenue
$64,160,032
Total Expenses
$61,748,106
Net Assets
$9,697,419
272 employees 934 volunteers
From latest filing (tax period ending 2025-12-31)

Financial Health

Operating Reserve
1.9 months Low
Net assets / monthly expenses
Year-over-Year Change
Revenue ↑ 6.3%
Expenses ↓ 6.4%
Revenue Sources
Contributions 84.7% Investment 7.0% Other 8.0%
Expense Breakdown
Program 70.9% Management 5.1% Fundraising 23.9%

Officers & Trustees (29)

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Filing History (6 filings)

YearRevenueExpensesNet Assets
2025 990 - Public charity return
Jan 1, 2025 to Dec 31, 2025
$64,160,032 ↑$61,748,106$9,697,419
2023 990 - Public charity return
Jan 1, 2023 to Dec 31, 2023
$59,437,892 ↓$62,127,770$8,393,836
2022 990 - Public charity return
Jan 1, 2022 to Dec 31, 2022
$63,227,837 ↓$58,970,307$6,808,664
2021 990 - Public charity return
Jan 1, 2021 to Dec 31, 2021
$63,393,990 ↓$53,419,636$4,721,750
2020 990 - Public charity return
Jan 1, 2020 to Dec 31, 2020
$63,707,273 ↓$68,372,442$-23,709,661
2018 990 - Public charity return
Jan 1, 2018 to Dec 31, 2018
$110,657,553 $107,797,032$9,946,503

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EIN: 13-1665552 · Source: IRS Form 990 e-file data