BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

GAHANNA, OH, 43230-3099 (800) 448-4570 Est. 1987 EIN 91-1397792
G8XZ - Diseases & Disorders 990 - Public charity return 501(c)(3)
bdsrafoundation.org

Mission

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

Giving Portfolio

Total Grants
13
Total Giving
$288K
Recipients
13
Years Active
2020 - 2024
Avg grant: $28,797 Median: $25,000

Yearly Trends

YearGrantsTotal Giving Avg GrantNewRepeat
20248$136K $17K62
20231$52K $52K01
20221$40K $40K10
20211$10K $10K10
20202$50K $25K20

Sectors Funded

Education
6
Health Care
2
Philanthropy & Grantmaking
1
Medical Research
1

Top States

New York
4
California
2
North Carolina
2
Colorado
1
Maryland
1
Missouri
1
Illinois
1
Ohio
1

Grantee Size Profile

Over $50M
8
Under $100K
1

Top Grantees

Grants Awarded · 13 grants

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Financials

Total Revenue
$601,964
Total Expenses
$967,326
Net Assets
$767,989
5 employees 40 volunteers
From latest filing (tax period ending 2024-12-31)

Financial Health

Operating Reserve
9.5 months Healthy
Net assets / monthly expenses
Year-over-Year Change
Revenue ↓ 19.3%
Expenses ↑ 1.6%
Revenue Sources
Contributions 94.1% Investment 5.9%
Expense Breakdown
Program 70.8% Management 20.9% Fundraising 8.2%

Officers & Trustees (14)

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Filing History (5 filings)

YearRevenueExpensesNet Assets
2024 990 - Public charity return
Jan 1, 2024 to Dec 31, 2024
$601,964 ↓$967,326$767,989
2023 990 - Public charity return
Jan 1, 2023 to Dec 31, 2023
$746,147 ↓$952,036$1,120,268
2022 990 - Public charity return
Jan 1, 2022 to Dec 31, 2022
$1,099,485 ↑$858,302$1,273,582
2021 990 - Public charity return
Jan 1, 2021 to Dec 31, 2021
$875,074 ↓$668,937$1,155,261
2020 990 - Public charity return
Jan 1, 2020 to Dec 31, 2020
$1,228,607 $718,019$949,124

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EIN: 91-1397792 · Source: IRS Form 990 e-file data