TO FUND PIONEERING RESEARCH AND COMPASSIONATELY SUPPORT THE BATTEN COMMUNITY. THE ORGANIZATION WORKS TIRELESSLY TO GIVE CHILDREN WITH BATTEN DISEASE THE BEST POSSIBLE LIFE, TO SPREAD AWARENESS OF THE URGENCY TO FUND NEW TREATMENTS, AND TO HELP ALL FAMILIES AFFECTED BY BATTEN DISEASE.
| Year | Grants | Total Giving | Avg Grant | New | Repeat |
|---|---|---|---|---|---|
| 2024 | 2 | $235K | $117K | 0 | 2 |
| 2023 | 6 | $673K | $112K | 1 | 5 |
| 2022 | 6 | $991K | $165K | 0 | 6 |
| 2021 | 8 | $811K | $101K | 4 | 4 |
| 2020 | 4 | $452K | $113K | 4 | 0 |
| 2018 | 2 | $210K | $105K | 2 | 0 |
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2024 990 - Public charity return Jan 1, 2024 to Dec 31, 2024 | $1,072,285 ↓ | $2,686,450 | $383,105 |
| 2023 990 - Public charity return Jan 1, 2023 to Dec 31, 2023 | $1,550,288 ↑ | $1,725,984 | $1,997,270 |
| 2022 990 - Public charity return Jan 1, 2022 to Dec 31, 2022 | $1,452,603 ↓ | $1,160,011 | $2,172,966 |
| 2021 990 - Public charity return Jan 1, 2021 to Dec 31, 2021 | $1,570,342 ↑ | $961,714 | $1,880,374 |
| 2020 990 - Public charity return Jan 1, 2020 to Dec 31, 2020 | $940,947 ↑ | $601,648 | $1,271,746 |
| 2018 990 - Public charity return Jan 1, 2018 to Dec 31, 2018 | $652,680 | $239,849 | $604,078 |
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